Oh man, I don't know if I will even be able to relay to you what has happened in the last 24 hours.
Yesterday about this time Nile was looking great and we were looking forward to discharge today. Clay left to go home and get the kids. I would stay with Nile until we were ready to go home. That afternoon our team of doctors came to the door and asked to see me privately. I could tell that something wasn't right. They took me into a private room and they all seemed very down. They told me that Nile had tested positive for PCP Pneumonia. Then they proceeded to tell me that because of several factors including PCP they were pretty positive that Nile had HIV. I was stunned and in shock. He had already had 2 negative tests with another more specific test still pending. They told me they were 90-95% sure and he would start the medications for HIV in the morning. They said that the pending test could come back negative but he could still have it and test positive down the road. I called Clay, a wreck, and told him the news. We had no clue what to do with the information. So until this morning we were praying for a miracle. We told a hand-full of our prayer warriors about the situation and asked for them to pray for a miracle. We knew that God wouldn't give us something we couldn't handle. And if he in fact, did have HIV we would love him just the same.
After a scary, "what if" night we saw the same team this morning. They got the RNA HIV test back and it was negative. We were relieved but knew that they had told us that this wasn't 100% and that he would need to be tested in the future.
Here is where the good news comes in.... we met with the Infectious Disease team from Vanderbilt....their take on everything was totally different. They are the people that deal with HIV every day. They told us that all of the tests done were very accurate and they were certain (less than 1% chance) that Nile didn't have HIV. They think that he was a preemie and malnourished and that is why he contracted the PCP Pneumonia. They told us that he didn't even HAVE to be retested and WOULD NOT START HIV MEDICATIONS!! They were surprised about the meeting that the other Drs. had with me the night before. The main Dr. told us we needed to be more worried about getting in a car wreck on the way home than Nile having HIV. So we knew that God had heard our cries and answered prayers. WE WANTED TO SHOUT PRAISES FROM THE ROOF TOP!!!!!!!!!!!
So, we are now at HOME AND NILE IS AWESOME. They said he has nothing that is contagious and that he needs to be cared for as if he were a preemie. We were told not to have him exposed to a lot of people due to the fact that he still has a weak immune system.
We are so grateful that Nile is OK and is gaining weight and acting more like a 4 month old now. We have seen amazing improvements!!
Please continue to pray for little Nile and his health. I know it will be hard to keep this little guy healthy through the fall/winter months. We will be following up on all of his testing in the future. We know that God is in control and will rest in that!!
THANK YOU FOR ALL OF YOUR SUPPORT, LOVE, CALLS, VISITS, CARDS, MEALS, PRAYERS!!!!!!!! THEY ALL MEAN SO MUCH!!!